Showing posts with label Barretstown. Show all posts
Showing posts with label Barretstown. Show all posts

Wednesday, September 03, 2008

The wishes of children with cancer



The Barretstown dreamcatcher is my favourite symbol for the Co. Kildare camp. The centrepiece of the Arts and Crafts room there, the campers, who all suffer from cancer or other blood related illnesses, write their wishes down, tie them into the dreamcatcher and there they stay, unread, untouched; secret wishes from children who have been touched by illness.

"Origami birds, shiny little boxes tied up with coloured string, feather coated parcels, all kinds of creations decorated with sequins and ribbons and crepe paper...

For a child with cancer, every wish counts."


Just launched is the new Barretstown Wishes campaign that invites people to not only think about the children from Ireland, the UK and 21 European countries who visit Barretstown, but to create their own wishes to send to Barretstown to join the wishes of other supporters in what they call the magic environment of the camp.



When I first visited Barretstown in 2004, it was the dreamcatcher above anything else in the amazing place that caught my emotions on the tour. Wishes from children that no one will ever read or know if they came true.

While, thankfully, I've never had to deal with the problem of having a child or sibling suffer from any major illness, it was easy for me to wonder what children had chosen to share in felt-tip marker and glitter, having experienced a new sense of freedom in the previous ten days. It was the idea of these wishes that made me volunteer the first time and kept me coming back for more.


All photos are taken from Barretstown.org and are courtesy of Maxwells.

Barretstown, part of Paul Newman's Hole in the Wall camps is set on 500 acres of Co. Kildare countryside - close enough to Naas - and welcomes children aged 7 to 17 to take part in their program of therapeutic recreation.

What happens there is nothing short of wonderful every year as children realise that they're not just an ill child, but a child, who like all the other children there have an illness. That's when the important bit, the serious fun starts.
"The children who come to Barretstown have often spent a long time in hospital enduring debilitating treatment. In the process they miss out on so much that most children take for granted. Simple things like playing in the local basketball team, or sleepovers at a best friend's house.



But Barretstown changes all that. Throughout the summer our camp has been ringing with the laughter of these children. They're here to rebuild their self-esteem and to get the reassurance that they can be happy and have fun. In turn, they rediscover things about themselves to help them cope with life outside Barretstown."
I've always been surprised that Barretstown has to go through so much to raise its funds every year. They receive 3% funding from the government meaning 97% comes from the public year on year. They have very generous fundraisers, volunteers and supporters but like every charity have to run campaigns to beg for donations to help make it happen. It's one of those strange dichotomies where to really understand what you're donating to, you almost have to experience it for yourself.



It's impossible for me to blog about what happens there without breaking into a smile as I remember certain children, their inspiring attitudes, discoveries and sense of adventure. There too are the volunteers I've made friends with, kept in touch with and continue to and mostly the experiences I went through that opened my own eyes to certain truths about others and myself. Barretstown taught me a lot about who I am and who I can be.



Barretstown offers safe challenges to the campers and the volunteers - or 'Caras' (gaelic for friend) - from hanging upside down and crossing a swamp to petting a horse for the first time to getting up on stage and performing to changing your perception of yourself and your ideas about illness. I've learned pity isn't as useful as a listening ear, sharing tears isn't as useful as sharing a hug and that above all a sick child is still a child, and so wants to have fun.



The Barretstown Wishes website offers some ideas of the wishes children might make. "To make new friends." "To be able to catch a fish in the Barretstown lake." "To have their hair grow back after chemotherapy." It's impossible to know, save that one of the only times I've ever seen tears there is when the camp sessions are over and the children have to go home. There and then the wishes tend to be that the children can come back.

Of course, if therapeutic recreation has had its desired effect - if the children have regained confidence in themselves to help them fight their illness, they won't come back as campers - often though they return as volunteers to help others, to share smiles, to have fun.



What would your wish be? Don't tell me, but head over to the Barretstown wishes site where you can download a wish keeper, find out more or help Barretstown by donating. They also have a wish list to ask companies for help other than just cash. You'd be making a real difference and maybe even helping some wishes come true.



Well done to Askdirect.ie for this campaign which I hope goes really well. You can find out more on the Barretstown website, including some beautiful film footage of the place. You'll find all information on volunteering here also. It may be worth the click :-)


Tuesday, July 08, 2008

Take a tour of Dublin or Kilkenny and help Barretstown

This is one of my favourite letters ever:



It came from Christopher, a Barretstown camper who wrote to say:

"Hi all, my name is Christopher. I was in Barretstown a couple of times. I had a great time. No nurses - No doctors chasing me. Not to do this or that. Just fun, fun, fun, The place is abolutely brilliant.

Just to let you know I had a kidney transplant a year ago and I'm doing well. As a special THANK YOU I would like to donate the money I have saved to help other kids the way you helped me.

A grateful camper,
Christopher"
There are many, many other letters like that coming from grateful children and parents whose lives have been touched by Barretstown. Now you can help out and have a bit of fun.



Ever wanted to take a bus tour around Dublin or Kilkenny?

This Thursday 10 July you can play tourist and see all the city sights in comfort, knowing that your ticket money goes to helping bring kids with serious illness to Barretstown.

CitySightSeeing Tours are kindly donating all ticket money for the Dublin and Kilkenny City tours for that day to Barretstown.

Tickets are valid for 24 hours and you can hop on and off as often as you like. Each bus has a mix of audio or live commentary from local guides. There's also a kid's commentary which is both educational and fun!

Remember the date is July 10th. All proceeds from that day's City Sight Seeing Tours in our capital city Dublin and Kilkenny, Ireland's medieval capital, will go to help bring more kids with serious illness to Barretstown.
I know some children who'd be very happy for the donation you can give :)



Check out how you can help Barretstown with your time or money. :) Please also tell your family, friends or random tourists on the street about this - every little helps.

Maybe I'll see you on the bus ;-)

Friday, July 04, 2008

Meet Adam Bender

I'd like to meet this kid and say well done. His story has inspired me.


Image by M. Spencer Green/AP, from here.

Adam Bender, 8, plays catcher, one of the toughest positions on the field with only one leg. Because of cancer, he had his left leg amputated when he was one. Adam doesn’t use a prosthesis, and only uses crutches when he reaches base for the Astros.


Michelle Bender, Adam's mom, told the Lexington Herald-Leader she appreciated the effect her son has on people young and old.

“Adam has helped other kids see that a person with a disability can be fun to hang out with, and play with, and they can still be a part of a community or part of a team. It's developed the kids' compassion.

“And if he can inspire even one family to allow their kid to try something they normally might not try, that's great.”

Having worked in Barretstown, I know the courage of children who have suffered from cancer and other blood related illnesses is exhilirating, inspiring and amazing. You can help just by clicking here.

Thanks Niamh for the nod :)

Friday, April 18, 2008

Platelet donations help people with cancer

One of the great things about my job is

What do you mean, what's my job?

Oh, right. Well, that's fair, I spose! I'm currently with Vodafone Ireland working on their mobile portal. You know. The interweb on your phone. When you click the little red button on your Vodafone phone, like. Well I help do that.



Anyways, one of the great things about it is that I get to work on doing interesting things in a new way - bringing things to people's attention that they may not otherwise have known about.

The whole mobile web (thanks in part to people like Pat Phelan) is certainly an interesting area to be working in. It's bringing information to people in a way they've never had it before.

Like the current Platelet donation campaign taking place for the Irish Blood Transfusion Board and the Irish Cancer Society. Jazzbiscuit has also highlighted it.



Can you help with a platelet donation?

Platelets are small blood cells present in the blood of all healthy people. They are essential to enable blood to clot properly.

Platelets are needed every day in hospitals around Ireland. They are an essential part of treatment for many patients suffering from leukemia or cancer, patients who need bone marrow transplants and sometimes new born babies.

The Irish Blood Transfusion Service and Irish Cancer Society are asking you to help with platelet donations for sick patients.

They also invite you to help them pass on information about platelets to people who may be able to donate.

Donation is simple, taking on average 45-70 minutes. In this short time a donor can help save up to three lives.



How do they collect platelets for transfusion?

In a process called apheresis, the donor's blood is passed through a special cell separator machine which extracts the platelets from the blood. The red cells and the plasma go straight back to the donor.

The whole process takes apparently between 45 and 70 minutes. The process uses the most modern technology to meet the growing need for platelet transfusions.

I've taken some of this text from the campaign running on Vodafone Live! All the FAQs are here.



Is this a safe procedure for the donor?

Yes, it is very safe. We ensure that donors have plenty of platelets to spare before the donation begins. Your body replaces all the platelets that you've given within a few days.

It is impossible to catch any viral infection by donating platelets or blood. We use a new sterile set (needle and tubing) for each donor. Sets are never re-used.

What is involved in platelet donation?

Donations take place at the National Blood Centre, James Street, Dublin 8 and at the Munster Regional Transfusion Centre, St. Finbarr's Hospital Cork. Normally we ask that you donate every month.

During the donation process you can watch television, read, or just relax. Once the donation process is complete you will be fit to resume your normal activities.

Who can become a platelet donor?

If you:

  1. donated blood successfully in the last two years
  2. are blood group O, A, or B
  3. are between 18 and 59 years old
  4. weigh over 9 stone 7lbs (60kg)
you may be eligible to become a platelet donor.

So here's what you can do.

Tell someone. Anyone. Everyone.

We all know someone affected with cancer. My dad is not long after his latest stay in St Luke's Hospital. Barretstown is gearing itself up for its summer of helping children with cancer and serious blood illnesses. Laura blogs about living with leukaemia at Distant Rambler.

This can make a difference.

Text platelet to 53377 for more information.

Check the IBTS website on http://www.ibts.ie.

If you live in Cork and are interested in finding out more please contact Rachel on 021 480 7430.

Friday, March 07, 2008

Get yourself a daffodil

It's Daffodil Day. :)


Well done and fair play to all the volunteers who are out on the streets of Dublin this morning collecting - it's something I've promised myself to do next year.

I really hope it raises millions for the Irish Cancer Society and supports the many, many people living with, helping and supporting and caring for those suffering from cancer.

If you haven't got the chance to buy a daffodil or make a donation yet, you can do so here. If you're feeling generous, please also consider donating to Barretstown, another charity close to my heart, who do amazing work with children who have had cancer and cancer related illnesses from Ireland, the UK and 21 other countries.

You can have a look at what they do below. Pretty inspiring stuff!

Sunday, March 25, 2007

Serious Fun with Bandanas to be had May 12th

On Sunday May 12th, grab a Bandana for Barretstown and have Serious Fun.







This year's Serious Fun Day for Barretstown should see something a bit different to the usual pins and flowers and ribbons and wristbands on the streets. There's a Barretstown Bandana!

Barretstown are hoping to raise €100,000 on the day to bring more kids with cancer and other serious illness to the castle. The bandanas are on sale in Smyths Toystores from April 28th.

The Bandana DesignIt's a very visible way of showing support for one of the most deserving children's charities I've ever had the pleasure of being involved with. Bit of (serious) fun too!

At only €2.00 each, buying one is a great way to ensure that children from Ireland, the UK and 21 European countries can continue to have fun at that magical place.

You can order a box of 50 for your office or workplace by calling +353 (0)45 864 115 or emailing serious.fun@barretstown.org.

Each year there are 12,000 new cases of childhood cancer in Europe. Barretstown can currently help up to 1,600 children with serious illnesses and family members each year. And boy, do they help! The results are evident.

Just to maintain these numbers, they have to raise €5 million each year and 96% of this money comes from companies and individuals. Every little bit helps.

I'll definitely be wearing one or two. And buying them for friends... and strangers...